Monday, May 24, 2010

Monday Update

I was with James all day and he was better than yesterday. He had periods of smiling and laughing and playing with his toys in between taking a few naps. He only threw up one time {on my shirt, darn!}, just after they gave him some medicine, so it was probably too much-too fast for his system. They increased his stomach tube feedings to 2 mL/hour and hopefully tomorrow he'll go up to 3/hr, which is what he was up to before the surgery. He's been mostly happy, except when he has to be changed. Kids with short gut syndrome often have really horrible diaper rash, since the output is very diarrhea-like and acidic, it really eats away at their poor baby skin. He hasn't had a fever since last night, so the docs said that once he's fever-free for 24-48 hours he can go possibly tomorrow or Wednesday! We had two nights by ourselves in the room, but today we got another roommate...a 3-year old girl with cerebral palsey and seizures who'd just had her tonsils out. Very painful and confusing for her. Please pray for everyone's comfort and sleep tonight! Keith said last night he only got about 2 hours of rest {and that was when it was just him and James!}. Keith heads back to work tomorrow and Darlene is fighting a cold, so it's a good thing we'll only have another day or two of this hospital schedule!


Allison McKenney said...

I am praying for your family several times each day. I am amazed at your strength! You deserve more than Starbucks. :)


Amy Erickson said...

During our devational this morning Ethan lifted baby James up in prayer. my baby praying for your baby; it was hard to hold back the tears. Praying, praying and praying that you will return home ASAP and for physical comfort for you and James.

"Shout for joy, O heavens; rejoice , O earth; burst into song
O Moutains! For the Lord comforts his people and will have compassion on his afflicted ones."
Isaiah 49:13

Anonymous said...

Hi Sis,
I'll keep praying for the 4 of you and hope that you can bring James home soon. You brought tears to my eyes and a smile to my face in your last blog when you said you were grateful for holding James & 2hrs of Ina Garten. You are so full of grace Lisa - always finding the good in any situation!

Love you guys so much -

Xo Dana

Heather Elizabeth said...

I am praying for you too! I hope that you are home by Friday when I come so I can rescue Maddie and give you a nap. I agree, Allison, WAY MORE THAN starbucks for sure!