Monday Update

I was with James all day and he was better than yesterday. He had periods of smiling and laughing and playing with his toys in between taking a few naps. He only threw up one time {on my shirt, darn!}, just after they gave him some medicine, so it was probably too much-too fast for his system. They increased his stomach tube feedings to 2 mL/hour and hopefully tomorrow he'll go up to 3/hr, which is what he was up to before the surgery. He's been mostly happy, except when he has to be changed. Kids with short gut syndrome often have really horrible diaper rash, since the output is very diarrhea-like and acidic, it really eats away at their poor baby skin. He hasn't had a fever since last night, so the docs said that once he's fever-free for 24-48 hours he can go home...so possibly tomorrow or Wednesday! We had two nights by ourselves in the room, but today we got another roommate...a 3-year old girl with cerebral palsey and seizures who'd just had her tonsils out. Very painful and confusing for her. Please pray for everyone's comfort and sleep tonight! Keith said last night he only got about 2 hours of rest {and that was when it was just him and James!}. Keith heads back to work tomorrow and Darlene is fighting a cold, so it's a good thing we'll only have another day or two of this hospital schedule!